This is my journey of trying to keep my three special kiddos, two with Congenital Heart Defects and the other with MCAD (metabolic disorder) on low fat diets while finding recipes they will actually eat!
We have been the hospital now for 75 hours and things continue to go great! Lil Sis had a very productive day yesterday. She had more IV's removed and then she was moved into the step down unit because of her progress. Once in her new room the nurses removed all 3 chest tubes and she was a trooper! Grandma came to visit and I got the opportunity to go home to see the bigs and attend men's group while mom had a friend visit over dinner! All in all it continued to be a very uplifting day. That being said, what would be a stay at the hospital with out a little action. At about 4am we woke to her screaming and covered in blood. She had tried to roll over and sleep on her tummy and accidentally pulled her hand IV out. It looked worse than it actually was and she was cleaned up in no time. Unfortunately, it had to be replace and it took 3 nurses and me to hold her down to make it happen. Her tornado mode was in full effect. She is now happy again eating breakfast and watching some PBS kids. It's almost like we are home, which coincidently may happen as early as today! :) We continue to pray circles around her and her recovery and can't wait to reunite her with the bigs. Thank you all for the prayers and support! It has been amazing!! Until next time.
Dad and the M Party of 5
And we know that in all things God works for the good of those who love him, who have been called according to His purpose. Romans 8:28